We wanted somewhere for our boys to live after we're gone

02 August 2016

Stephanie Berick and Dianne Monaghan have been talking about their experiences of the NDIS at Endeavour Foundation Information Forums around the country since 2013.  They’ve been in the Hunter Valley trial site for almost three years now and enthusiastically share with other parents how they set up a share house for their adult sons with a disability, with the assistance of the NDIS.

Their two sons house share with another man with a disability, using their disability pensions to pay rent and bills, while the NDIS funds the support workers that allow them to live independently.

Steph said they were trying to find somewhere for their adult sons that was a viable home that would remain in place after they were gone.

"And that is the concern of most parents of particularly adult disabled children,” she said. "Particularly as we’re getting older.”

The boys are happy in their home and have come on in leaps and bounds, doing things their Mums never thought they could, like their own food shopping, their own washing, volunteering and cooking.

"Before the NDIS came into existence we had decided on the plan about the housing but we had no funding," she said.

"If the NDIS had not come into existence, the house would have been actually unsustainable in the long-term for the boys, because the NDIS provides all the money for the support for the boys in the house."

The compelling 5 minute documentary of the boys’ story can be viewed here.

It’s a great watch and demonstrates that, for many, the NDIS brings much greater opportunities for independence.

Contact us to find out how we can support you

Share:    



Other blogs and information you maybe interested in

“Girls can do anything!” - meet Danielle

Danielle is here to show us just what she can do. Danielle works in Southport, on the Gold Coast.

Her mantra? Don’t let anything hold you back.

Federal Election 2022: People with disability - exercising your right to vote

Voting is one of the most important responsibilities we have - it’s a way we can voice our opinion about what is important to you and choose who represents you in the federal parliament.

Information about voting can be long, complex and hard to understand. We’ve put together some tips on how you can prepare to participate in the upcoming Federal Election.

So what happens when I’m gone? A guide for parents of children with disabilities.

More than half a million Australians have intellectual disability and a growing number continue to be looked after by their parents well into adulthood.

But what will happen to our child with disability when we’re gone, and who will take care and watch out for them?

The happy fact is your child is likely to outlive you, so planning for their future is important.

What it's like having Autism Spectrum Disorder

There’s a saying – when you’ve met one person with autism spectrum disorder, you’ve met… one person.

That’s because Autism Spectrum Disorder (ASD) is just that, a spectrum that affects each person differently. For Autism Awareness Month we spoke to two people who have autism, and share what having this invisible disability is like for them.

Endeavour support worker

What it’s really like being a disability support worker

We had a chat with Kylea Hughston, a Disability Support Worker who has been in the disability industry for two years. Here, she shares insight into the role, what an average day looks like and why she believes it’s an ideal career choice.

Anxious about COVID? You’re not alone

It’s now more than two years into the pandemic and we’re all experiencing the physical and mental toll it’s taking on our lives.

If you’ve noticed that you’re feeling anxious about COVID, you’re not alone - it’s a very normal response.